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Dr Elizabeth Barnby, president of the Tyrosinemia Society
The Tyrosinemia Society will elevate the public’s understanding of the condition and call attention to the special challenges people face when diagnosed.
About Tyrosinemia Society IncPatient advocacy
The mission of the Tyrosinemia Society is to educate and inspire individuals to advocate for those with tyrosinemia and related disorders. The tyrosinemia community of advocates, caregivers, and health professionals is a complex and evolving healthcare environment that will benefit from inspirational leadership and non-profit advocacy. The society is committed to excellence in education, scholarship, clinical practice, and service to families affected by tyrosinemia. To read more about the organization, visit the website at www.tyrosinemia.org or contact them via phone, email, Twitter, or Facebook.
For more information
Tyrosinemia Society IncDr. Elizabeth Barnby