Welcome to the Tyrosinemia Society Inc media centre.
About Tyrosinemia Society IncPatient advocacy
The mission of the Tyrosinemia Society is to educate and inspire individuals to advocate for those with tyrosinemia and related disorders. The tyrosinemia community of advocates, caregivers, and health professionals is a complex and evolving healthcare environment that will benefit from inspirational leadership and non-profit advocacy. The society is committed to excellence in education, scholarship, clinical practice, and service to families affected by tyrosinemia. To read more about the organization, visit the website at www.tyrosinemia.org or contact them via phone, email, Twitter, or Facebook.
Press release archiveA selection of our press releases
Tyrosinemia Society, a New Rare-Disorder Patient-Advocacy Organization, Launches to Fulfil Needs of Families and Researchers
The Tyrosinemia Society, with organizational assistance from the National Organization for Rare Disorders (NORD) and The University of Alabama in Huntsville, launches online.
For more information
Tyrosinemia Society IncDr. Elizabeth Barnby