Celebrities Descend on The City to Raise Money for Lowe Syndrome Trust
December 06, 2011, London, England. Press Dispensary.
Jonathan Ross leads a bevy of celebs on December 7
The UK’s Lowe Syndrome Trust is to be a beneficiary of the high profile ICAP Charity Day – a fundraising day on December 7, 2011, where UK Royalty and celebrity guests gather in the city of London to help raise millions of pounds for a select number of specially chosen charities.
This is the first year in which the Trust – a small UK charity which funds research into the rare, incurable childhood disease, Lowe Syndrome – has been chosen to take part in such a day.
Joining the Lowe Syndrome Trust’s founder and chair, Lorraine Thomas, will be Jonathan Ross (the charity’s Trustee), Rod and Penny Lancaster Stewart (a Trust Patron), Tony Hadley (Patron), Lisa Voice (Patron) and former England rugby player Andrew Gomarsall.
Past celebrities to attend ICAP Charity Days around the world include HRH The Prince of Wales, HRH The Duke of Cambridge, HRH Prince Harry, Daniel Craig, David Tennant, Elton John, Bill Clinton, Meryl Streep, Sarah Jessica Parker, Jon Bon Jovi, Laurence Dallagio, Jamie Oliver, Kevin Spacey, Frank Lampard, Denzel Washington and Geri Halliwell, among many others.
On this day, ICAP - the world’s largest inter-dealer broker - gives away its revenues and commissions to the select charities. Last year £12.1 million was raised globally, £5.4 million of it in the London office where The Lowe Syndrome Trust will this year be a beneficiary. ICAP is also organising an on-line auction for each charity to help boost the fundraising efforts.
Trust chair Lorraine Thomas said: “We’re very grateful to the ICAP charity selection committee for choosing Lowe Syndrome Trust as one of its charities this year, and I also want to thank Jonathan Ross, Rod Stewart and Penny Lancaster Stewart, Tony Hadley, Lisa voice and Andrew Gommershall for giving up their time in our support. We’re getting ever closer to finding a cure to Lowe Syndrome and a great day like this can make all the difference to our researchers.”
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Notes for editors
Lorraine Thomas founded the Lowe Syndrome Trust in 2000 after her own son, Oscar, then aged six, was diagnosed at Great Ormond Street children’s hospital with Lowe Syndrome. She was told that Oscar, who is still with her, would live until seven.
The disease causes seizures, autism, scoliosis, muscle wasting, weak bones, cataracts, glaucoma and much more. Seizures are one of the many distressing aspects of the disease and some Lowe sufferers and their families have to cope with as many as 20 serious seizures per day, baffling most consultants. Some children suffer horrendously and are unable to talk or walk.
The Lowe Syndrome Trust is now the main funder of research worldwide and its researchers are genuinely and excitedly close to a ‘cure’. Every pound raised brings the day closer.
Supporters of the charity include trustee Jonathan Ross and patrons Penny Lancaster Stewart (wife of Rod), Tony Hadley (of Spandau Ballet), Christopher Biggins, Daily Express publisher Sir Richard Desmond, Tom Conti, Melanie Sykes, Melanie Blatt, Sir Richard Sykes, Lisa Voice and Baroness Susan Greenfield.
The Lowe Syndrome Trust is a UK registered charity, No 1081241.
The images with this release online are free for the press to use in articles about the Lowe Syndrome Trust. Further images are available in the image library at http://www.pressdispensary.co.uk/image_library/q99720.php
For further information, please contact:
Lorraine Thomas, chair
The Lowe Syndrome Trust
Tel: 020 7794 8858 / 07958 444020