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Tyrosinemia patient advocacy
The Tyrosinemia Society, with organizational assistance from the National Organization for Rare Disorders (NORD) and The University of Alabama in Huntsville, launches online.
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About Tyrosinemia Society Inc

Patient advocacy

The mission of the Tyrosinemia Society is to educate and inspire individuals to advocate for those with tyrosinemia and related disorders. The tyrosinemia community of advocates, caregivers, and health professionals is a complex and evolving healthcare environment that will benefit from inspirational leadership and non-profit advocacy. The society is committed to excellence in education, scholarship, clinical practice, and service to families affected by tyrosinemia. To read more about the organization, visit the website at www.tyrosinemia.org or contact them via phone, email, Twitter, or Facebook.

For more information

Tyrosinemia Society Inc

Dr. Elizabeth Barnby
President
Phone: 256-384-4490
Email: info@tyrosinemia.org
Site: www.tyrosinemia.org


Twitter: @tyrosinemia
Facebook: @tyrosinemiasociety

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